Lisa, Russell and Baby Francesco Enrico Ventura

Lisa, Russell and Baby Francesco Enrico Ventura

In pride of place in my office is thisphoto; the most special of many photos. It pictures proud parents holding a beautiful baby boy. It has “THANK YOU” inscribed on it, and on the back there is a beautiful heartfelt hand-written message. This baby is beautiful… but he is silent and still.


It started with a letter to the Worcester News from Mom praising the Hospital Staff and explaining all the hopes and dreams and fears of being an expectant parent. Little did the parents, Lisa and Russell Ventura know then what a journey would face them and their little one FRANKIE.

And so with hope and courage and resilience they dealt with the news that Little FRANKIE had a cleft lip and palate, and with energy Lisa appeared as a Guest Blogger on my site ( telling of her experiences so far and determined to use this for good and to raise awareness of the Cleft Lip and Palate Association. We marvelled at the 4-D scan which brought FRANKIE to life before our eyes in FRANKIE’S VIDEO (!my-videos/ctqb) and the way in which Mom and Dad dealt with each blow-“ we get knocked down then get up again!”

But the journey had more to dish out, more than we could ever know at the time. And by now many of our lives were intertwined with this journey. We, too, had become part of it, hoping and waiting with expectation to see this beautiful little boy.

So after the all clear of a final scan, and a breath of relief, DEVASTATING NEWS. A blood test had detected something. – a rare chromosomal anomaly which brought terrible, tragic, wicked news. Frankie would not be able to survive outside of his Mom’s tummy.

By this time I now counted Lisa and Russell as friends, along with many others. I had met Nanny and Grandad, shed tears, and talked about the coming days.

Together we made plans that no parents should have to make, of how to say goodbye to their child.

And then, Mom could no longer feel Frankie moving; and Francesco Enrico Ventura was born sleeping at 4.43am on Friday 29th November 2013 weighing 4lbs 10oz.

I have so much more to write. Of his baptism and blessing which I had the privilege of being invited to take on the ward; of the kindness and concern of the Delivery Midwives under the leadership of Matron Rachel Carter; of holding this beautiful boy in my arms and wishing for him to wake, to make a movement, to cry. Of the funeral some days later- dignified, celebratory, beautiful.

I have so much more to write but can’t bear to at the moment.

And only God knows the HELL that Russell and Lisa went through.

And yet, through it all, they held on; and could even see glimmers of hope. They are indeed remarkable people; no wonder Frankie was such a remarkable boy.
Their bravery has enabled them to create FRANKIE’S WEBSITE ( in which he tells his story. And their aim is to have a LEGACY FOR FRANKIE ( to show “how one special unborn boy changed the world even after his death…” and to raise awareness of still birth and cleft lip and palate.

So I count it an honour to post this as my tribute to FRANKIE.
A privilege to count Lisa and Russell amongst my friends.

And I share their story with a hope that we might spare a few moments of silence and prayer for them all.


  1. Is it better to have loved and lost than to never have loved before?

    This is an incredibly touching story and my heart goes out to Frankie’s family. Sadly yesterday I received the results of my repeat fertility test, which proved I can never father a child. I am devastated and yet this story has somehow helped me.

  2. Frankie is on a special journey with the angles and growing his wings. Thoughts and prayers for Mum and Dad xx

  3. Pingback: Two Weeks On…. | Frankie's Legacy

  4. Pingback: Chaplains Blog – 10th December | Frankies Legacy Press site

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